Somewhere To Write

Posted by cfkid on 2015/07/11 under Uncategorized

We have been working a hopeful law called David s law for about 3 yr. This law would help thousand s of students with cystic fibrosis through out America. We have parents that are having to take care of the cf student in the parking lot each day some day s many times because they have to have this med in order to eat anything meal or snack. I my self has cystic fibrosis and know what I had to go through during the school years as well I had to leave my class 15 min before meals and then I would miss the end of that class as well as if we went on a field trip there were some that I was not able to go because they did not have anyone to help me with this issue. CF gets placed on the back burner many times in are school system there are other issues besides this one but this is one of the major ones that is happening in the public schools. Many of the parents are even having to go on every field trip with the students with cf because they do not have anyone to give the emzymes to witch means that they lose the time at work so many of the parents are having to stop working this means only one income in the family below is the law that we are trying to get passed currently we have supporters from each and every state through out america. We have tried to get the media to do a story but they always say they are not willing to do the story this is very sad but they will do a story about someone being shot or other bad stuff this would help so many if we could just get a law maker to say I will help you and make sure the law get s to the senate and the house we have called reporters and news people from all over the USA and no one has picked up the story however we did a TV ad at the gas station TV and when we did this the phone rang off the hook stating that they were all agreeing with what we were trying to do.. Currently we need help with getting the story out there to everyone in the world. A few years back we went to DC and spoke with many law makers they stated to me that they wanted to help but yet nothing to date has been done when we first got back we got many phone calls but nothing further . Many of the states have passed this law on there own now as well as many school districts I will be teaching in the fall in WV about the law and cystic fibrosis they have agreed to allow this to be ok in there school system as long as they can call us if they need help any time. so this is a plea to any reporter from any news media out there through out America as well as news reporter in news papers as well please if you can help us in any way we are all ears .. It was also really neat last year we got a phone call from are cell phone company were we have the 24 hr hotline running that number is 612-282-1211 we got 1 million calls for support or for information about David s law as well i almost fainted when this happen but we are the only support line in america that is open 24 hr s a day like I stated above here is the law that we wrote that we want to be passed

David s Law

Children with Cystic Fibrosis are required to take supplemental pancreatic enzymes before meals. These enzymes allow the student to digest food properly. Currently, the law states, each student must go to the nurse’s office, each day. The nurse than administers the medication to the student. This is a time consuming process, which takes forces the student to leave class early or miss part of the lunch hour. This inhibits the student’s ability to either learn or have adequate time to finish lunch. This is also becoming problematic, due to budget cuts in the schools. Some schools are eliminating full-time nurses, which would make it impossible for students to take their medication each day.

Some schools have passed laws that allow students to carry medication such as over over-the-counter pain relief medications. The main impetus for the current restrictions is to insure the safety of the students by keeping controlled substances (such as prescription medications) out of the hallways and classrooms of the school.

However, the danger of someone taking un-prescribed pancreatic enzymes is negligible.

We believe students who have Cystic Fibrosis and require pancreatic enzymes before meals, with a Doctor’s note, should be able to carry and administer their own medication. If the student demonstrates understanding and compliance with the prescribed dosage, before the school nurse, the student should be free to carry and administer the medication.

If you agree, please sign this petition and contact your lawmakers both state and federal, so David’s Law will become law as soon as possible.

If you have any questions or want to help the cause, please contact David Wagner’s Cystic Fibrosis Hotline at 612-282-1211

The more that we share this story on face book and other places the higher chances we can get a reporter or a law maker to see this story and understand what is needing to happen again thanks to everyone who is reading this story as well as the support that has come forth are petition to law makers is at www.petition2congress.com/2418 and anyone can call to talk about CF or David s law thanks again David cfkid

Recent Comments

• Anonymous on Rising cost of living causing children in low-cost housing to eat less than three meals a day
• Anonymous on Rising cost of living causing children in low-cost housing to eat less than three meals a day
• Anonymous on Rowling
• Anonymous on Cassandra
• Anonymous on Dear abusers

Tags